An international, observational registry by and for the FOP community to help advance the development of treatments.

Click here to learn more, or visit the IFOPA website.

Not Registered ? Join Now !


Having a strong, vibrant registry helps our community be better networked for clinical trials and helps researchers plan better for clinical trials. We need your participation to succeed. Join now!


Information is power, and a community-owned registry puts the power of data collection into our own hands. Whether you are a patient or a doctor, sharing your experience with FOP will help make us a stronger community and enable more and better therapeutic development. Join now!


There are many unanswered questions about FOP. Help us all learn more about FOP from each other, educate those outside our community, and ultimately enable better and more efficient development of treatments. Join now!